Parients and Family

Other sources of support

Specialist Nurses

Each treatment centre has its own specialist nurse practitioners available to their patients.  They can help you make decisions about which treatment to have and they can support you as you recover.  Some nurses can refer you to counselling if you need it, and some centres organise patient groups that you may be able to join.

To speak to your specialist nurse, call the centre where you were treated and they can put you in touch.  The main numbers are below:

Glasgow (Tennent Institute) – 0141 211 2934
Liverpool (RLBUHT) – 0151 7063973
London (Moorfields) – 020 7521 4639
Sheffield (Hallamshire) – 0114 271 3962

Online Support

The UK Eye Cancer Forum

This is an independent discussion forum set up and run by a group of patients as a source of support and information.

OCU-MEL: The International ListServ

This is an independent international email list set up by Pete Tustison from the USA.

To subscribe, send mail to LISTSERV@LISTSERV.ICORS.ORG with the following command in the e-mail message body:


Macmillan Cancer Support

Macmillian’s online community has an eye cancer page to share experiences, ask questions or vent your emotions, and find others who understand.

Need to find out more?

Call our helpline today!

0300 790 0512

Contact Us


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