About OcuMel UK

Latest news

30th March 2018

OcuMel UK on YouTube

Many people have liked our videos as part of our Eye Matter Too campaign, talks from our annual conferences and our one-off videos.  These videos help us all to understand more about this .  condition.

These videos can be viewed & shared on our YouTube channel here.   Please subscribe to be the first to view new videos as they become available.

28th February 2018

OcuMel UK launch Eye Matter Too campaign on Rare Disease Day 2018

Today we give people affected by ocular melanoma a voice, so they can inform the public what it’s like to be affected by this rare cancer.

People are invited to share their experiences throughout this campaign to highlight the difference between life with a rare cancer, compared with more common cancers.  It will also shown how little research is focused on this life threatening condition.

Key messages will be used to highlight why OcuMel UK’s work is so important.  Our aim is to raise money to increase the support and information available to people affected by this condition and to support research.

Background

Lesley Kirkpatrick, fought for many years to highlight the inequalities many people with ocular melanoma faced.  From her experience as a General Practitioner, she understood the risks involved and ensured she received MRI scans.  She educated many people in how to use research based evidence when explaining why they too should receive these scans and how various treatments could be explored.  This campaign is being planned in memory of Lesley, a truly inspirational woman who helped to launch why patients should have a voice.

Participants will answer what it is like to be affected by ocular melanoma.  Their response shown will be shown in one of three ways.

  • Still photo with a key message
  • Slideshow with voiceover
  • Short video clip

OcuMel UK will share at least one of these messages each day on social media throughout the month long campaign, starting today on Rare Disease Day.

 

To take part, please decide which version you would like to take part in and e-mail all requirements to info@ocumeluk.org.  The version will depend on the length of your key message.

Still Image – Please provide:

  • 1 x ‘Head and shoulder’ portrait photo of either yourself/ yourself with family or friend affected by OM/ family or friend affected by OM.
  • Write your personal response to ‘What is it like to have OM’?
  • Personal message/ response should not exceed 50 words.
  • Choose a ‘tag line’ to use with your message and image (choices below).

Slideshow – Please provide:

  • Several photos of either yourself/ yourself with family or friend affected by OM/ family or friend affected by OM.
  • Write your personal response to ‘What is it like to have OM’ & record it as a voice memo.
  • Voice memo should not exceed 60 seconds.
  • Choose a ‘tag line’ to use with your message and image (choices below).

Video – Please provide:

  • Write your personal response to ‘What is it like to have OM’ & record a video message of either yourself/ yourself with family or friend affected by OM/ family or friend affected by OM.
  • Video should not exceed 60 seconds.
  • Choose a ‘tag line’ to use with your message and image.

If you have any questions about this campaign, please contact the OcuMel UK here.

9th February 2018

Regular eye examinations – did you know they can save lives?

There is a common misconception that going for an eye examination is all about your vision and how healthy your sight is.

4th December 2017

Petition affecting Scottish uveal melanoma patients

Jennifer Lewis & Iain Galloway explain why they feel so strongly about uveal melanoma patients being given regular MRI scans rather than ultrasounds.

22nd November 2017

OcuMel UK issue press release

OcuMel UK have issued this statement to clarify why we support a petition raised by an ocular melanoma patient in Scotland.

21st November 2017

OcuMel UK respond to the Scottish Parliamentary Commission

We have long supported Jenni Lewis with her petition so she and other patients can access MRI scans in Scotland. You can keep updated with the progress of this petition through here

2nd November 2017

OcuMel UK join #EyeGetDilated

We are glad you join Cure OM and promote the #Eye Smart Campaign running this November to raise the importance of eye tests.  Read more here.

1st November 2017

Just an Eye

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