Questions for your ocular oncologist
It is natural that you will have many questions when you are diagnosed with uveal melanoma. As there is very little information available, and each patient is different, the best person to answer your questions is your ocular oncologist.
The ocular oncologists in the four UK eye centres are highly specialised, and deal with adult ocular tumours on a daily basis. Most of them also have nurses you can call if you find you have more questions when you get home. To make the most of your time in your appointments, OcuMel UK recommend you write down your questions in advance. It can help to have someone come with you who can make sure you have asked all the questions on your list, and to help you listen to the answers.
In over 50 visits spanning more than two decades, I found the entire team at the eye centre to be unfailingly individual, caring and involved with my assessments and treatments. -Keith Tanner
Being diagnosed with any cancer is incredibly stressful, and having a rare cancer can make you feel very isolated. OcuMel UK can put you in touch with other patients with uveal melanoma. To find out more, please call our helpline.
Here we have gathered together some questions as a starting point for you.
- What size is my tumour?
- What are my treatment options?
- Are there alternative treatments offered at other centres?
- Which treatment do you think is best for me and why?
- How will my vision be affected?
- What is the best way of determining my risk of the cancer spreading?
- What tests will you do on my tumour if I have my eye removed, or a biopsy?
- What follow-up will I receive after treatment?