Questions for your ocular oncologist
It is natural that you will have many questions when you are diagnosed with conjunctival melanoma. As there is very little information available, and each patient is different, the best person to answer your questions is your ocular oncologist.
The ocular oncologists in the four UK eye centres are highly specialised and deal with adult ocular tumours on a daily basis. Most of them also have nurses you can call if you find you have more questions when you get home. To make the most of your time in your appointments, OcuMel UK recommend you write down your questions in advance. It can help to have someone come with you who can make sure you have asked all the questions on your list, and to help you listen to the answers.
All the staff at the eye centre were, and still are, amazing. They have been so helpful throughout my journey.
Being diagnosed with any cancer is incredibly stressful, and having a rare cancer makes you feel very isolated. OcuMel UK can put you in touch with other patients with conjunctival melanoma. To find out more, please call our helpline.
Here we have gathered together some questions as a starting point for you.
- What type of conjunctival melanoma do I have, and what does that mean for my prognosis?
- What are my treatment options?
- Are there alternative treatments offered at other centres?
- How will my vision be affected?
- How likely is my cancer to recur in my eye after treatment?
- Has my cancer spread? If so, what are the treatments available?
- What tests will you do on my tumour if I have my eye removed or a biopsy?
- What follow-up will I receive after treatment?