Parients and Family

2012 – Facilitating networks in ocular melanoma

Over 60 people attended OcuMel UK’s second annual conference at the Pentahotel in Reading on 28th September 2012. Professionals, patients and caregivers enjoyed talks by a variety of speakers on topics as diverse as screening, genetics and patient advocacy.

The event was sponsored by Sirtex, Delcath Systems, Bristol Myers-Squibb and the JCE Trust.The conference was a great success and huge thanks are due to our speakers, our sponsors and to everyone who came.

Please scroll down to view the videos from the day.

Mr Paul Rundle: The Sheffield approach to ocular melanoma

Mr Rundle is an ocular oncologist working at the Sheffield Centre. Having completed his training in Ophthalmology at the Royal Victoria Hospital, Belfast, Mr Rundle undertook a clinical fellowship in Ocular Oncology at the Wills Eye Hospital, Philadelphia. Mr Rundle joined the team at the Royal Hallamshire Hospital as Consultant Ophthalmologist in 1999. He has lectured widely in the field of Ocular Oncology and has published more than 40 research papers as well as chapters in 5 ophthalmic textbooks.

Mr Neil Pearce: The role of Percutaneous Hepatic Perfusion (PHP) in ocular melanoma

Mr Pearce has been a consultant hepatobiliary surgeon at Southampton University Hospitals NHS Trust since 2003 following his fellowship in liver transplant surgery at St James’ University Hospital in Leeds. He has been elected to the national council for the Association of Upper GI Surgeons (AUGIS) and has been the clinical lead for the introduction of new laparoscopic techniques in liver and pancreatic surgery, and the AUGIS clinical commissioning lead.

Kathryn Curtis: Report from the CURE OM Symposium in Philadelphia

Kathryn is the General Manager of OcuMel UK. In June 2012 she travelled to Philadelphia on behalf of the charity to attend a patient meeting where many leading experts spoke including Dr Takami Sato, Dr David Eschelman, Dr Karin Gonsalves, Dr Scott Woodman, Drs Carol and Jerry Shields and Dr James Pingpank. Here she presents a summary of the meeting.

Julia Black/Rose Woodward: What are the issues facing a patient with a rare cancer?

Julia Black joined the Patient Support Team at the Rarer Cancers Foundation in 2011. She is a breast cancer patient who has battled the disease twice, she is acutely aware of the huge disparity in information and support available to patients diagnosed with a rare cancer. Julia is passionate to redress this imbalance and to improve services and outcomes for rarer cancer patients, ensuring that they are afforded the same high quality support she experienced. Rose Woodward heads up the Patient Support Service for the Rarer Cancers Foundation. She is a survivor of a rare cancer which gives her a unique insight into the problems faced by her fellow patients. Following successful treatment for renal cancer, Rose co-founded a nationwide support network for kidney cancer patients to provide information and practical support for patients refused NHS treatment for their disease. Together, Julia and Rose have successfully supported over 250 cancer patients through the Exceptional Treatment Funding process.

Dr Anthony Blakeborough: Considerations of imaging techniques for detecting advanced ocular melanoma

Dr Blakeborough is a consultant radiologist who works alongside the ocular oncology team at the Sheffield centre overseeing the extra-ocular surveillance programme. Dr Blakeborough trained in Leeds and has been a consultant in Sheffield since 1997. He is a GI specialist with an interest in liver MRI.

Prof. Sarah Coupland: Introduction to the genetics of ocular melanoma

Professor Coupland is Head of Academic Pathology and an Honorary Consultant Pathologist at The University of Liverpool and the Liverpool Cancer Research UK Centre. Her research interests are ocular oncology Lymphoma; intraocular and ocular adnexal lymphomas, uveal melanoma, conjunctival melanoma, cutaneous melanoma.

Mr Sachin Salvi: Ophthalmic Issues with common complications of primary ocular melanoma treatments

Mr Sachin Salvi is a Consultant Ophthalmologist at Royal Hallamshire Hospital, Sheffield. His areas of expertise are Ocular Oncology, Orbital surgery and Oculoplastic surgery. With his orbital and oculoplastic experience, he is able to enhance the ocular oncology service at Sheffield by managing complex issues of ocular melanoma including orbital extension of tumours and orbital recurrences. He takes a keen interest in training the next generation of Ophthalmologists and is involved in voluntary ophthalmic surgical work in Trinidad and Tobago as well as India.

Mr Paul Rundle: Interpreting the guidelines for referral to the tertiary centre

Mr Rundle is an ocular oncologist working at the Sheffield Centre. Having completed his training in Ophthalmology at the Royal Victoria Hospital, Belfast, Mr Rundle undertook a clinical fellowship in Ocular Oncology at the Wills Eye Hospital, Philadelphia. Mr Rundle joined the team at the Royal Hallamshire Hospital as Consultant Ophthalmologist in 1999. He has lectured widely in the field of Ocular Oncology and has published more than 40 research papers as well as chapters in 5 ophthalmic textbooks.

Professor Sarah Coupland: An update on the development of national UK guidelines

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