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Welcome to OcuMel UK, the charity which represents people affected by ocular (uveal) melanoma.

We hope that on our website you will find all the information you need to help you understand your condition and treatment options. To watch videos from our conferences, please click the relevant tabs on the navigation bar.
If you need more help, please contact us, or if you would like to chat to others, please check out the OcuMel UK Facebook pages and the eye cancer forum on the external links page. 
Please help us by becoming a member of OcuMel UK.   It's free and is the best way to show your support and to connect with others and their families.
Please also consider fundraising for us or donate to help us continue our work into 2015.
Need more info?  Call our HELPLINE

What is Ocular Melanoma?

Ocular melanoma (OM) is a cancer of the eye, including the iris, choroid or ciliary body. This can spread (metastasise) to other organs, typically the liver.

Approximately 50% of patients will develop metastatic disease within 15 years of the original diagnosis, and once the liver is involved the cancer is currently incurable. However, if the spread is found early enough there are localised treatments that can potentially extend life expectancy or help improve quality of life for those affected.

There are also many new drug therapies being brought to trial, and some of them have shown great success in other types of melanoma such as cutaneous melanoma (skin cancer).      

When you are diagnosed with ocular melanoma, you will be referred to one of the
specialist eye centres who will deal with the tumour in your eye. Your eye doctor will decide which is the best initial treatment for you. You will also have tests to work out whether your cancer has already spread and this is called staging.    

If metastases are found at the time of diagnosis, your eye doctor will work closely with your medical oncologist to decide on the best course of treatment for your personal circumstances.

If your cancer is contained within the eye at diagnosis you will be referred for ongoing follow-up, the aim of which will be to identify any future spread in a timely fashion.

You will continue to have regular checkups of your eye and you may need further eye treatment depending on your situation.