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Welcome to OcuMel UK, a charity which represents people suffering with ocular (uveal) melanoma.

We hope that on our website you will find all the information you need to help you understand your condition and treatment options. If you need more help, please contact us, or if you would like to chat to other sufferers check out the eye cancer forum on the external links page.  If you agree with what we are doing please become a member of OcuMel UK.   It's free and it will help us to continue our work.

Need more info?  Call our helpline on 01276 682190

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What is Ocular Melanoma? 
Ocular melanoma (OM) is a cancer of the eye, including the iris, choroid or ciliary body. This can spread (metastasise) to other organs, typically the liver. Approximately 50% of patients will develop metastatic disease within 15 years of the original diagnosis, and once the liver is involved the cancer is currently incurable. However, if the spread is found early enough there are
localised treatments that can potentially extend life expectancy or help improve quality of life for sufferers. There are also many new drug therapies being brought to trial, and some of them have shown great success in other types of melanoma such as cutaneous melanoma (skin cancer).      

When you are diagnosed with ocular melanoma, you will be referred to one of the
specialist eye centres who will deal with the tumour in your eye. Your eye doctor will decide which is the best initial treatment for you. You will also have tests to work out whether your cancer has already spread and this is called staging.    

If metastases are found at the time of diagnosis, your eye doctor will work closely with your medical oncologist to decide on the best course of treatment for your personal circumstances. If your cancer is contained within the eye at diagnosis you will be referred for ongoing
follow-up, the aim of which will be to identify any future spread in a timely fashion. You will continue to have regular checkups of your eye and you may need further eye treatment depending on your situation.